Today is Rare Disease Day. Ivey falls into this catergory. With her known diagnosis as a deletion to her 21st chromosome, she is a rare little bird. There is no assigned name to her genetic abnormality, no small group of children to connect with, no parents to get advice from, no associations Read More
Archive for February, 2010
Rare Disease Day – February 28th, 2010
February 28th, 2010 by Just Another Ordinary Miracle
Posted in Hearing Aid |
The Asparagus Song
February 28th, 2010 by Orange
(If you’re confused by the title of this post, read this.) Short, sweet, and always in motion. Oh, and his haircut isn’t really that crooked. He has the most infernal hair growth pattern — we call it the Dagwood — and that’s just the way it was hangin’ Read More
Posted in Cochlear Implant, Music |
blame it on my strength 2010-02-28 22:13:00
February 28th, 2010 by nostalgic childhood
(Busy week indeed. A basketball tournament that was 10 hours away on a very tiny bus. I felt right at home; with the majority of the crowd speaking my language. Sign Language. I met a really funny boy, he was so serious yet he teased often. Said he was practicing to become an actor. Practice Read More
Posted in ASL, Deaf |
Neurology Visit: Prepared
February 28th, 2010 by Say What?
Every parent who has a child who sees any sort of a “specialist” has to come up with a system for organizing medical reports and for keeping track of appointments. I use a small year-long planner for keeping track of appointments, and I have a binder for keeping track of Nolan’s Read More
Posted in Hard-of-Hearing |
Hearing Aid Mistake Number 474643939…um, I forgot her this time.
February 28th, 2010 by the cuteness of curiosity
I have not written on my blog lately about my hearing loss. I used to blog about it so much more, but over the past few months I seem to have let it slip off the blog radar. When I first started this blog, I really wanted to write and connect with other Deaf/HOH bloggers. And I did do Read More
Posted in Deaf, Hard-of-Hearing, Hearing Aid |
New Classroom for Katie
February 28th, 2010 by Kauffman Family Update
I’ve been trying to get a chance to post about this for a few weeks now, but have been super-busy and just haven’t had the time! Anyway, I wanted to let everyone know about the change in classroom placement that Katie started in mid-January. The week before Christmas break, Read More
Posted in Cochlear Implant, Education |
Workshop for Residents of Georgia
February 28th, 2010 by Cochlear Implant Online
Teresa Caraway will be giving a talk at the Atlanta Speech School about maximizing listening with cochlear implants. A cochlear implant user who sent me an e-mail about this information said, “She has so much experience and even I learned a ton. It is geared towards adults, but parents have Read More
Posted in AVT, Cochlear Implant |
Feeling Exploited Part Two
February 28th, 2010 by Please face me, I read lips
(This is a two part article. Scroll down for Part One) So OK – the going rate for a pair of hearing aids is somewhere between $2500 and $8000. I understand how supply and demand affects the cost of things. There are not enough deaf/HH people buying hearing aids, so everything costs more Read More
Posted in Hard-of-Hearing, Hearing Loss, Late-Deafened |
Saturday, February 27th, 2010
February 28th, 2010 by T & t + 3!
It’s official we are now suffering from MTS in our household. MTS is short for multiple tank syndrome. Several weeks back we discovered we had two fish babies. One managed to make it in the tank for a few days the other close to a week. Although we would like to believe they passed away Read More
Posted in Baha |
Hearing Sparks 2010-02-28 18:35:00
February 28th, 2010 by Hearing Sparks
Thanks to new closed caption complaint rules, if you see garbled, missing, too-fast or otherwise difficult-to-read captions you can now complain directly to the FCC. You need to file your complaint within 60 days of noticing the problem. You can file your complaint using their online form here, Read More
Posted in Hearing Loss |
Friday, February 26th, 2010
February 28th, 2010 by T & t + 3!
It’s been a long week with Mommy out of town. She left Monday afternoon to go to Salt Lake for work and didn’t get back until last night. Daddy has done a great job of taking care of me and made sure I got time to talk to Mommy in the morning after I woke up and at night before bed Read More
Posted in Baha, Non-Deaf/HOH Topic |
Feeling Exploited
February 28th, 2010 by Please face me, I read lips
There is one point I have to agree with Butch Zein of the Deafhood Foundation. His ‘bordering on exploitation’ comment seems appropriate given that I recently had to pay $500 extra dollars for a hearing aid remote that could have been sold for far less– and should have been thrown in Read More
Posted in Hard-of-Hearing, Hearing Loss, Late-Deafened |
Great Blog I Hope You’ll Look At
February 28th, 2010 by From Silence to Song
I always try to follow the blogs of those who post on my blog entries. I like to learn what I can about my readers. Each one has something interesting inside them that most always teaches me something about me. As I followed the blog link to a recent poster, I found a link she had posted on her Read More
Posted in Cochlear Implant |
Elegant Hearing Aids
February 28th, 2010 by Eh? What? Huh?
I found a website, through RLMDEAF’s blog, called Tuvie design of the future. It contains a design concept for “elegant” hearing aids. It features these interesting looking silver earrings and it comes with a ring which acts as the controller. Very interesting! However, I have Read More
Posted in Hearing Aid, Hearing Loss |
Danny’s ABR, May 21 2008
February 28th, 2010 by Ordinary Miracles
I’m going back in time nearly 2 years today… I realized that I’d never really recorded the day of Danny’s ABR. Fortunately (in a sense), this is one of those memories that seems to have crystallized, so I can still remember much of it – the important parts – as though it were Read More
Posted in Hearing Loss |
Brain Treats Sign and Speech the Same
February 28th, 2010 by About.com Deafness
Researchers have found that language is treated the same by the brain, whether the language is spoken or signed. For instance, they found that if deaf people are asked to sign and use pantomime, the brain activates different parts of the brain for each one, even if the pantomime gesture is the Read More
Posted in Deaf, Hearing Loss |
Support David’s Project
February 28th, 2010 by Cacophony to Symphony
Calling all kids, their parents, teens, and adults with hearing loss! I have a wonderful project to share with you, and it calls for your participation. David Cluff is 16 years old and has bilateral cochlear implants. He is extremely involved in his community, and even started a Cochlear Read More
Posted in Cochlear Implant, Hearing Loss |
Ear’s
February 28th, 2010 by The Lutz Family Fun Page
Jason has been so momma needy lately I knew something was up. He didn’t eat, wouldn’t suck his bottle, and he has been drooling quite a bit. Tonight he cried for about 2 hours. After he fell asleep and then woke up screaming again, I took him over to KidCare. Jason has an ear Read More
Posted in Hearing Aid |
The deaf boy in the world… 2010-02-27 19:33:00
February 27th, 2010 by The deaf boy in the world
Got 175 out of 180 on LSAT… Found out that the score will get me accepted in BYU Law School. Maybe I will reconsider after I get my 2nd bachelor… Who knows… Read More
Posted in Cochlear Implant, Education |
Sharp as a butter knife…
February 27th, 2010 by Cochlear Kids
Yep, that’s me. Boy, I really amaze myself sometimes…I never said I was the sharpest tool in the shed, but today I really showed how clumsy I can be. Having OCD (obsessive compulsive disorder) in my family (more than one person!) I try not to over worry about little Read More
Posted in Cochlear Implant |
Animal Sign Language
February 27th, 2010 by About.com Deafness
Not everyone knows how to sign “cat” or “dog.” This Newsletter|Twitter|Facebook|Forum animal sign language books out there. You can also send me a picture of yourself signing the name of an animal and I will add it to this gallery. Read More
Posted in ASL, Deaf, Hearing Loss |
Beat Them to the Punch
February 27th, 2010 by Eh? What? Huh?
My hearing aid is not working, so I have been without it throughout today. So, I am more aware of my hearing loss and I am extra careful when out in public places. I know a lot of times people will say “Hi” in passing, just to be nice. I do not want to seem as if I am ignoring them. Read More
Posted in Hearing Loss |
Bilateral CI Seminar in Chicago, March 6th
February 27th, 2010 by Sudden Silence
If you’re wondering about bilateral cochlear implants (either you have one already and are thinking about another, or you’re wondering whether to go for it and do both ears at once) and you live near Chicago, there’s a seminar coming up that you won’t want to miss! This seminar is being Read More
Posted in Late-Deafened |
Say It Right
February 27th, 2010 by candy
Being Hard of Hearing all my life, I always learn new ways to pronounce things every day. More so, ever since I gave birth to my daughter. You should see us together, she is probably the only one that bothers to correct me. Just today I was reading an article on the earthquake in Chile Read More
Posted in Deaf, Hard-of-Hearing, Hearing Aid, Speech, Uncategorized |
“Timber!”: A variation on the theme
February 27th, 2010 by Dr. DonG.'s Deafhood Discourses
QuickTime by: vPIP Embed (copy & paste): close // I came up with this variation on the old “Timber!” joke after assigning the joke to my students to practice. Read More
Posted in ASL, Deaf |
Soundbooth Check
February 27th, 2010 by Loving Lily
A few weeks ago Lily went for a soundbooth check at 6 months post activation. She responded to speech at 20 dB in her left ear and 15 dB in her right ear. She seems to be doing great. Her newest word is “ball.” Cochlear implants are truly a miracle. Here are some pictures of Lily and Read More
Posted in Cochlear Implant, Hearing Loss |
Taking Good Care of My Hearing Aid Even When I am Not All There
February 27th, 2010 by Eh? What? Huh?
No matter how sleepy or out of it I am, I never lose or misplace my hearing aid. Last night my hearing aid stopped working and I was watching a movie with a friend. I took out the hearing aid and held it in my hand. I was so sleepy. I fell asleep clutching my hearing aid. When I woke up, my Read More
Posted in Hearing Loss |
Special Ed teacher at Birney school shot and killed
February 27th, 2010 by Kokonut Pundit
A special ed teacher was shot and murdered on the grounds of Birney School in Tacoma, Washington today right before children arrived to school. The suspect was killed in a police shoot-out. A case of a stalker who was infatuated with this teacher. The school’s main webpage has already set Read More
Posted in Deaf, Hard-of-Hearing |
Proof That the Only Thing He Can’t Do Is Hear
February 26th, 2010 by From Silence to Song
I’ve always made it my personal mission to point out that the only thing my Deaf children can’t do is hear. I guess it’s not highly likely that they’ll be air traffic controllers either, but who’s really counting? CJ has always surpassed the expectations of those Read More
Posted in Cochlear Implant, Education |
Three Items on Sight Impairment
February 26th, 2010 by Hearing Sparks
I may be hearing impaired, but I’m interested in all kinds of disability news and accommodations. We are all connected, no matter our abilities. Today I noticed quite a bit of news relevant to those with sight impairments. Kotaku has news about the visually impaired gamer who sued Sony in Read More
