Archive for September, 2008

IEP problems

September 30th, 2008 by Brianna's Journey

So, it was probably my fault for not pushing sooner, but here’s what is going on…. Brianna never had an IEP. The school convinced me that they were doing everything necessary for Brianna (and they were), so she didn’t need one at that time. Last year, knowing that state testing Read More

Moola Crisis, is it affecting you YET?

September 30th, 2008 by candy

I was checking out Cubs tickets in Wrigley Field for the National League Championship Games (NLCG) just to see how much the tickets were.  I was floored to see that it costs 520 and up just to get one game 1 NLCG ticket.  A month ago, I thought I’d check and see if I can buy one of Cubs Read More

Circle Time

September 30th, 2008 by Cochlear Kids

Today we parents got to stay for “circle time” at preschool. Keep in mind Brook goes to a special ed preschool and there are plenty of kids there with various disabilities, some obvious, some invisible, some with simple speech delays. Can I just tell you how impressed I am! First, Read More

Campaigning for deaf children at the Conservative party conference: day 2

September 30th, 2008 by Campaigning for deaf children

One of the ways a charity can punch above its weight at the party conferences is go to lots of fringe meeting and ask a question to the speakers at the end. It gets you noticed and gets you attention as a player in the game. It also means people know who you are afterwards, and can lead to all Read More

Oh how I have changed…but not really…

September 30th, 2008 by Live*Laugh*Love*Family

As part of my birthday extravaganza (which today is the actual day that I turn 30), last night, one of my besties took me to see Rusted Root, which is by far, my most favorite, most treasured, and most special band. This is a band that I’ve listened to since early high-school. I had their Read More

Deaf Australian Student Sues Australian University

September 30th, 2008 by About.com Deafness

A deaf student in Australia, struggling with her courses, is suing Australia’s LaTrobe University over what she claims are lack of interpreters/inadequate interpreters and poor quality notetakers. According to the… Read More

Our Team

September 30th, 2008 by Ordinary Miracles

It absolutely amazes me, as I sit back after all of the research I’ve done in the past few months, how lucky we are to be here in the St. Louis area with a deaf baby. One of the most recent news pieces to hit the CI community is a study confirming the safety of [...] Read More

My Hearing Loss and My Son

September 30th, 2008 by Speak Up Librarian

The person who’s been most affected by my hearing loss has to be my son. He’s the one who talks about the most unexpected things leaving me in a daze. He’s the one with the longest stories told in an excited manner that leave me lost somewhere in the middle. He’s the one Read More

Please Ask Your Hearing Kids with DHH Siblings…

September 30th, 2008 by An American Mom in Tuscany: Jordan's Cochlear Implant Story

Dear All, Leeanne of Hands & Voices is preparing a study of hearing kids with DHH siblings. Please take five minutes, ask them these questions and either respond by leaving a comment or email the response to jodi@rallycaps.net You may find some answers that surprise you, or this may give you Read More

Deaf Misbehaving Five Year Old in School

September 30th, 2008 by About.com Deafness

A new school employee is frustrated and bewildered by the behavior of a deaf five year old boy. While the parents speak Spanish at home, the child is being taught… Read More

Birth to Age 24 Hearing Aid Coverage in Delaware

September 29th, 2008 by Hearing Aid Action

Delaware Approves Hearing Aid Benefit Audiologists Hail New Law That Provides Coverage from Birth to Age 24   see also: The Power of Advocacy cite as: Shafer, D. N. (2008, Aug. 12). Delaware approves hearing aid benefit. The ASHA Leader, 13(10), 1, 8. by Dee Naquin Shafer Effective Jan. 1, Read More

No Listening and Spoken Language Services in Your Area? Now What?!?

September 29th, 2008 by Cochlear Implant Online

You’re the parent of a newly identified deaf or hard of hearing child.  You’ve decided to pursue listening and spoken language for your child.  Great!  Then you discover that there are no Certified Auditory-Verbal Therapists or Oral Deaf Education schools in your area.  Now Read More

Bilateral Again and an IEP Update

September 29th, 2008 by Erin Toes and her Cochlear Implant Journey

I’ve been very remiss in not updating! It turned out my concerns about Erin adjusting to her left processor again were unnecessary. The next morning, she accepted her processor without complaint. I still opted to keep her on the lowest setting for that first day, but she did fine. She even Read More

Working on Receptive Language

September 29th, 2008 by Say What?

Nolan’s expressive language is coming along swimmingly, but everyone has noticed an obvious lag in his receptive language. This is definitely new territory for me, since my speech-delayed child always had above average receptive language. While Nolan understands most of what he says Read More

Campaigning for deaf children at the Conservative party conference: day 1

September 29th, 2008 by Campaigning for deaf children

The travelling circus has now moved to Birmingham where the Conservatives are finishing off the party conference season. As we’re still knackered from the last two and as we have a busy day tomorrow, we took today a bit easy – but still managed to go along to two fringe meetings and meet Read More

My Wonderboy

September 29th, 2008 by Melissa Wiley

The other day I mentioned that Wonderboy got another new diagnosis this summer and I have been wanting to write about it but needed to think through the privacy issues first. After taking some time to ponder, Scott and I agreed that this is something just as important to write about as the Read More

Finding my rhythm

September 29th, 2008 by Tania Says

It was an eventful weekend in the life of Tania. I got my cochlear implant activated on Saturday (see post below) and had an all-day dance try-out on Sunday. I’m amazed at how many things can change in the course of a weekend! Sunday (yesterday) I had an audition for Fusion, my school’s Read More

Research Supporting Bilateral Cochlear Implantation

September 29th, 2008 by Becoming Deaf in Norway 2007

Someone heard me! And I got hold of what I needed! A 5 pages long list of research that supports the notion that everybody who needs it should have bilateral CI! I got in contact with Amy Brown from the Let Them Hear Foundation Advocacy program. She provided me with a huge list called “Research Read More

“So like…now do you have to stay away from metal objects?”

September 29th, 2008 by Tania Says

This past Saturday I had my cochlear implant activation. I was SO nervous…I was scared (and still am) of how much the CI would change my world. I have very set habits and kept wondering what everything would sound like. I have some hearing, so I have an understanding of sound, but there are so Read More

He’s a Preschooler!

September 29th, 2008 by Tayten Matthew

Today is Tayten’s first official day of school! I am so excited for him!! I armed him with his Kaci Koala, Kaci’s BTE, and Cochlear coloring books for all to take home and share with their families. I will have introduced half the town (not really) to CIs by the end of the day. Read More

A NICE result on cochlear implants

September 29th, 2008 by the DeafBlog

NDCS, in collaboration with other charities, has achieved a milestone victory concerning cochlear implants in England and Wales. Cochlear implant funding for deaf children has for many families been a postcode lottery with some children offered one implant, some two and some being forced to wait Read More

ENT Meeting, CI Plan

September 29th, 2008 by Ordinary Miracles

When I found out Danny was deaf and started getting online, I found a number of blogs by parents of young kids with cochlear implants. I had been told from the start that is was a good possibility, with Danny’s loss, and to help adjust I looked for success stories, stories about how it all Read More

Update on Captioned Movies bill

September 29th, 2008 by Smashing Down The Door

Hello all: Just a quick update on this bill here in Kentucky, it has been assigned to the Interim Joint Committee on the Judiciary.  The bill is referred to as BR69, sponsored by State Senator Ray s. Jones.  I am enclosing here for you to review, if you live in Kentucky, a list of the Read More

September Update

September 29th, 2008 by The CI Journey

I REALLY should update this thing more often. Life is crazy! Things are going very well with his implant. He started working on speech therapy with just the implant, not using his hearing aid in the other ear. He still uses his HA at work, but takes it off when he gets home to practice Read More

Saying goodbye to my hearing loss

September 29th, 2008 by Bravo Rod

It wasn’t a lost relationship. It was more like a lost set of keys I needed to drive. But that’s not quite right either. Losing my good eyesight might come close but with appropriate glasses complete restoration is possible. So that‘s not it either. With hearing aids I’m still incomplete. Read More

Failure…

September 28th, 2008 by Laura's Medical Journey

There are times when I feel like I’m a bit of a failure because of the way I am now. I know my family put up with a lot with me and how my OCD is and that makes me feel bad about myself because I just can’t snap out of it although I really wish I could. I see friends or my brother going to Read More

Evan’s Birthday Party 2008

September 28th, 2008 by The Hine Family.. Est.1996

Today we celebrated Evan’s 5th birthday.. I am extremely exhausted and am heading to bed for the night. I have added a picture of the boys from St. Joseph Institute for the Deaf (his classmates and friends) but can’t seem to get the video of all of them singing Happy Birthday to Read More

Bullies All Around Them

September 28th, 2008 by children of a lesser god ... (not)

Reading my daughter’s note to her teachers reminds me that over the years I have seen many forms of bullying in the schools (not to mention the buses!), and we must spend time teaching our children to fend for themselves even if it’s just disregarding hurtful comments. Some children, Read More

Who are YOU?

September 28th, 2008 by Please face me, I read lips

This morning’s Seattle Times had an article about biracial people.  Evidently Seattle is a hot spot of biracial existence.  I am not surprised.    I found myself nodding while reading some of their comments about being biracial.  Not because I’m biracial, but because I understand Read More

I’m Tired Of Feeling Excluded

September 28th, 2008 by SayWhatClub Weblog

This is a rant, but if it educates just one person with perfect hearing I’ll feel it was a success.  I’m tired of being excluded from office chat at work, from family chat at home and from general discussions everywhere else.    Friday morning, like every other morning I work, four of us Read More