Mommy wasn’t sure what to expec, t today when it came to the Special Care program appointment. According to the website: The Pediatric Special Care Program provides coordinated, cost-effective, and family-centered health care services for children and teens with developmental disabilities Read More
Archive for the ‘Baha’ Category
How Much Do You Love Your Hospital?
August 26th, 2010 by Sneak Peek: Raising A Special Child
Or Specialist? Therapist? Nurse? How much do they understand what you go through? I am known for venting often about our crazy situations with Home Health Care nurses. (Luckily, we have two excellent nurses right now, knock on wood, so I have little to complain about, except that they can only Read More
Posted in Baha |
Thursday, August 19th, 2010
August 22nd, 2010 by T & t + 3!
Although I would not be headed into surgery until close to 11:30 we were supposed to report to the hospital at 8:00 am. So my parents and I got up and got ready. As we headed out of Ronald McDonald House, I had my princess purse slung over my shoulder. We had a few minutes to spare, so Read More
Posted in Baha |
Monday, August 16th, 2010
August 17th, 2010 by T & t + 3!
After all the stress, testing and transition meetings today was the big day. Finally, I have an IEP and I will be attending the oral/spoken language preschool with Utah Schools for the Deaf and Blind. There are still a few things to work out – the biggest being getting a nurse assigned Read More
Posted in Baha |
Wednesday, August 11th, 2010
August 13th, 2010 by T & t + 3!
Despite hitting, kicking and generally terrorizing the dogs at every turn I really do love my furry brothers and (surprisingly) they still love me (okay not all the time but most of the time). Daddy took the day off to take me to my retesting appointment for the school district. Without a Read More
Posted in Baha |
Friday, August 6th, 2010
August 8th, 2010 by T & t + 3!
Mommy called the representative at Canyons School District today to get some more information. When they retest me next week they will use a different test and it will be administered by a speech pathologist. Had I been one percentile lower last time I was tested I would have qualified so if I Read More
Posted in Baha |
Wednesday, August 4th, 2010
August 8th, 2010 by T & t + 3!
Mommy has been looking forward to today’s appointment – my speech and feeding evaluation. Finally, I am getting some formal speech therapy! My feeding therapist in California did some great work over the last year but now I am going to have the opportunity to have someone devote Read More
Posted in Baha |
Tuesday, August 3rd, 2010
August 8th, 2010 by T & t + 3!
A note from Mommy: Driving home tonight, an unknown number came up no my cell phone. With my cell phone number being the contact for all things Peyton, it wasn’t unusual so I answered. I was just pulling up in the drive way to pick her up from work, and as I answered the phone I could Read More
Posted in Baha |
Thursday, July 28th, 2010
July 31st, 2010 by T & t + 3!
At Grandma and Grandpa’s house tonight for dinner I played with cousin Traiton and Uncle Jason. You can see I am helping out with the hammer on the lawn chair. I have some exciting news. Today in the mail Mommy received the trach cap she had ordered last week. So when she got me in the Read More
Posted in Baha |
The time has come…….
July 31st, 2010 by Keeping Up with the Kenty's
to build Jansen a “new ear” I can’t believe our little guy is about to start this journey. We knew this day would come, but wow it got here fast. Jansen will begin his surgeries with Dr. Jones on November 16 at Scottish Rite. You can find more info here: Read More
Posted in Baha, Hearing Loss |
Thursday, July 22nd, 2010
July 25th, 2010 by T & t + 3!
It’s been a couple of busy days. On Tuesday night, Brandy from Maxim came by to do the acuity assessment to determine if I qualify for additional nursing hours through Medicaid. Since we still had the plan of treatment from the Maxim nurses in California it was a pretty short meeting. On Read More
Posted in Baha, Non-Deaf/HOH Topic |
Cutting and Pasting
July 22nd, 2010 by Say What?
We had several interesting lectures today, including lectures on the development of speech sounds, literacy and the deaf child, and how to create experience books. In support group, we wrote letters to our hearing children, telling them how much we love them- the letters will be read to the Read More
Posted in AVT, Auditory/Oral, Baha, Hard-of-Hearing, Hearing Loss, Speech |
Of Baseball and Car Fires
July 22nd, 2010 by Say What?
Nolan’s earmolds are Dodger Blue It’s never a good sign to have your car start spewing out smoke as you’re waiting in a thick line of traffic, attempting to enter the stadium. On the other hand, it allows for great language lessons: Car Fire, Overheating, Clutch, Read More
Posted in AVT, Baha, Hard-of-Hearing, Hearing Loss |
Inchstone: Sitting Alone
July 14th, 2010 by Sneak Peek: Raising A Special Child
This is what happened the first time Austin sat up on his own in his crib. Two years ago today! Those are bendy bumpers from the hospital. He still sleeps with them every night. Check out the custom made hearing aid headband made by Grandma. Hi there cutie! Oh shiny objects… (Check out Read More
Posted in Baha |
What In The Heck Is She Talking About Now?
June 25th, 2010 by Sneak Peek: Raising A Special Child
In order to demystify my world a little bit I am about to crack the code let you in on some FAQ. I realize Special Needs (SN) parents speak and write in our own lingo. Here are some terms I use regularly in my articles that you may not be familiar with (in no particular order, except for the ones Read More
Posted in Baha, Hard-of-Hearing |
Atresia Repair – Option or Not An Option?!?
June 22nd, 2010 by God's Handprint
Today, we received a phone call from Dr. #2 regarding the atresia repair surgery (inner ear reconstruction). And, the answer was the same as Dr. #1. Atresia repair surgery is not an option for Ryan. He scored a 4-4.5 in his right ear and a 5 in his left ear. Obviously a 40-50% chance of Read More
Posted in Baha |
Milestones
June 22nd, 2010 by The Mamahood
The day after tomorrow, my oldest is a first grader, and her first year of elementary school is over. The week after that, she’ll turn 6—and she’ll be officially through the first 1/3 of her childhood. To me, it’s blown… Read More
Posted in Baha |
Wednesday, June 16th, 2010
June 18th, 2010 by T & t + 3!
Although it will only be in effect for a month, Mommy still needed to meet with the local school district to sign an IFSP – Individualized Family Service Plan. I have had IFSP’s for every six months since I came home from the hospital but as of next month, I am offically Read More
Posted in Baha |
Tuesday, June 15th, 2010
June 16th, 2010 by T & t + 3!
Despite their best efforts, I have been waking up around 3 am every morning. By the time Mommy hears me on the monitor I have been crying for awhile and am pretty wound up. Once Mommy gets in my bed with me it takes me a long time to fall back to sleep – and Mommy is virtually a zombie at Read More
Posted in Baha |
Please Teach Your Children About Differences
June 13th, 2010 by Sneak Peek: Raising A Special Child
Thankfully Austin is still young and doesn’t understand what happened yet. But I DO! And frankly it is irritating me that more parents have not taught their children about how rude it is to gasp, stare and point at my 2 year old son. Yes, I’m serious. Today we went to a local Barnyard Read More
Posted in Baha |
Check…Check…Wait
June 4th, 2010 by God's Handprint
Ryan had his CT scan yesterday – check. He did an awesome job lying still considering he is an active little guy. They did not sedate him and I do not believe that it was even an option for them. I don’t know what we would have done if he hadn’t been so cooperative. He got a Read More
Posted in Baha |
Friday, May 28th, 2010
May 30th, 2010 by T & t + 3!
Mommy, Grandma and I met with Emilie from the Utah Schools for The Deaf and Blind today to get some more questions answered about the programs. Daddy, Grandma and I will visit each preschool on Tuesday to help determine which path I should take – ASL or spoken language/listening skills. Read More
Posted in Baha |
The Power of Love
May 30th, 2010 by Sneak Peek: Raising A Special Child
Day in and day out I write about the things on my mind and occasionally, I write about the things on my heart. It probably seems more so the latter lately because I am having to make difficult decisions about Austin’s medical care that are complicated and risky. Sometimes the risk is Read More
Posted in Baha, Non-Deaf/HOH Topic |
Wednesday, May 26th, 2010
May 29th, 2010 by T & t + 3!
Today was my first step in transitioning to preschool in Utah. It was my evaluation with Early Intervention. I like to make things a little difficult for everyone so as of tomorrow I am officially in the 90 day transition from Early Intervention to preschool. To complicate things further, Read More
Posted in Baha |
Thursday, May 20th, 2010
May 22nd, 2010 by T & t + 3!
My night went pretty well – just a tiny bit of O2 for a few hours to bring me up from the mid 80’s on my sats to mid 90’s. Then it was back to room air and I was in the low 90’s which the doctor’s were happy with. This morning the doctors came by early to let me Read More
Posted in Baha, Non-Deaf/HOH Topic |
Monday, May 17th, 2010
May 20th, 2010 by T & t + 3!
It was a pretty busy day today what with Mommy going back to work in the office, a doctor’s appointment and soccer in the evening. So Mommy worked a little in the morning and then Grandma, Mommy and I went out to the Primary Children’s Outpatient Clinic at Riverton Hospital for my Read More
Posted in Baha |
Wednesday, May 12th, 2010
May 13th, 2010 by T & t + 3!
Tonight was my first soccer class at the Eccles Field House on the U campus. Daddy had to work late, so Mommy and I headed out on our own. Cousin Jackson had signed up too but as he is recovering from an ear infection he stayed home tonight. Mommy was not expecting how difficult it would be to Read More
Posted in Baha, Non-Deaf/HOH Topic |
Saturday, May 8th, 2010
May 10th, 2010 by T & t + 3!
Now that I’ve finally caught you up on what has been going on in our lives, I can share a picture with you of the house my parents are in the process of purchasing. It is plenty big for us and really close to both sets of grandparents. It was empty for over a year and the yard needs a lot Read More
Posted in Baha |
Friday, May 7th, 2010
May 7th, 2010 by T & t + 3!
Daddy and I Pandy, Henry and Chili watching me nap Uncle Jeff on Donner’s Pass Yes I know, I have taken a very long break from blogging. Well a lot has happened in the last few weeks that I can now catch you up on. My life has changed dramatically and in lots of great ways. The biggest Read More
Posted in Baha |
Overwhelmed!
May 2nd, 2010 by God's Handprint
That is me… Really trying not to be, but am nonetheless. After a week and a half of waiting, we spoke to the doctor’s office in CA regarding Ryan’s surgeries. I was half crazy (okay, maybe more than half crazy) waiting for them to return my calls last week and began Read More
