Lotte Sofie – Born august 2002, hearing since november 2004 2012-02-04 03:52:00

February 4th, 2012 by

.. they happen all the time, and like I have said on the blog.. sometimes they fly by, and sometimes they stand up in your face… (well, I said something to that effect..) Last Thursday was the yearly checkup for Lotte. A great day out since we (actually, this was the first time I could be Read More

 

Music and My Cochlear Implant, Part Two– Week Seven

February 4th, 2012 by

I didn’t expect to be able to hear music right away when my cochlear implant was first turned on. I could barely understand speech at first. Charles Limb’s depressing Ted talk  had been posted on-line just a few days before my surgery. If you listen to it, you’ll hear him say at about the Read More

 

Another Good Week!

February 3rd, 2012 by

Overall, Elijah had another good week at school. Monday was an ALL Green day!! Tuesday through Thursday was a little rough. No aggression, at least, but he did spit, which is a tic, but one he needs to learn to not direct at people and he said ONE bad word, but it was the BIG bad word. He also Read More

 

Dignity and Respect.. Where is it?

February 3rd, 2012 by

I had already sent my e-mails in support of HB 1367 and low and behold I find this on Deafread.com.. I do not have any issues with anyone opposing this bill but to use my child’s name is disrespectful. I do understand that I put his name on a public blog, but once again I amazed at what Read More

 

Quick March

February 3rd, 2012 by

Happy squeal! Just got a call from the CI coordinator at Children’s and they have set up his next three candidacy appointments on Monday and Tuesday of next week -  I had no idea things would move so quickly! Monday he has an Auditory Skills Evaluation, then on Tuesday an aided and Read More

 

Hate Mail ~ Part Two

February 3rd, 2012 by

In my previous post about being called a f*ckn audist by Ricky Taylor, I stated that that would be the reason I would not allow my child to be around Deaf adults. I apologize for that! I should not stereotype and I do know that he is not a representative for the Deaf Community. When I wrote that Read More

 

Bilingual Bimodal Webinar

February 3rd, 2012 by

Bilingual Bimodal Education Webinar 1 I watched this and I loved it! I hope this is the direction Deaf schools are headed! The information was great and I can’t wait to watch the next one! (And now we have a name for Miss Kat’s language progress…sequential bilingualism!) Read More

 

Catching up

February 3rd, 2012 by

Wow, no post since Tuesday.  Goes to show you what this week has been like.  Blog is not high on the priority list in the grand scheme of things so when life gets busy, blog takes a backseat.  I’m sure all of you can relate to that one.  Not even doing a Flabulous to Read More

 

Another Parent’s Story..

February 3rd, 2012 by

This is another Parent’s story..  Thank you for sharing! If you choose to leave a derogatory comment, I will NOT post. This parent was courageous enough, in my opinion, to share their story!   I can tell you no one ever contacted me through Outreach and when I did contact Read More

 

Ear infections again?

February 3rd, 2012 by

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Audiogram time

February 3rd, 2012 by

  We had another audiogram yesterday. As you can see, E thinks these are pretty fun. He did great responding to all the tones, but ignored the speech. They said this was just an example of highly developed “selective hearing” He is pretty used to hearing people speaking now Read More

 

Wednesday, Feburary 1st, 2012

February 3rd, 2012 by

Guess who showed up via email, blog and Facebook today?  I kicked off the Patient Stories today leading up to the World RARE Disease Day! PATIENT STORIES OF HOPE AND INSPIRATION – ‘Meet Peyton!’ Peyton isn’t that much different than any other four year old if you ask her. She Read More

 

The Two Week Wait

February 3rd, 2012 by

No, not that kind of two week wait, but the kind of terrified anticipation of finally being given the option of making a life altering decision for your deaf son. That’s right, people, the CI debate is back on! In late November, our wonderful local audiologist was unable to discern Read More

 

Flex Watches for Disability Awareness and Charity Support

February 3rd, 2012 by

Through the Yahoo! Accessibility website I learned about Flex Watches, a site which sells watches in 11 colors. Each color represents a different charity and 10% of their net profits are distributed evenly amongst the charities. They also host marketing campaigns to help raise awareness for the Read More

 

I *Think* I Hear

February 3rd, 2012 by

Right Ear I wear my hearing aid in my deafened ear for a few hours each day. When I get alone somewhere, I try screaming as loud as I can and whistling as well. With my cochlear implant off, I concentrate on what I might be registering with my aided ear. I think I am picking up a very faint sound Read More

 

My Thoughts on HB 1367, Thus Far

February 3rd, 2012 by

Rather than build an entirely new center, why not keep the outreach center where it is and look at what exactly is going on there. If there are problems, fix them. Perhaps the staff needs more training or some staff members need to leave. Perhaps new rules need to be enforced to encourage staff Read More

 

Minnesota Caucuses on February 7th

February 3rd, 2012 by

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5.

February 3rd, 2012 by

Sometimes when we are racing all over the Metro-DC area from school to sports to play dates I find myself wistfully dreaming back of the simpler days with Christian. I have these golden memories of rolling on the ground with him the day after he was fitted for his hearing aids. Sure it was a big Read More

 

Speech Reading

February 3rd, 2012 by

“Dear Sir/Madam, Thank you for your e-mail regarding lip-reading and sign language tuition. Ofsted is the Office for Standards in Education, Children’s Services and Skills in England/Wales and our role is to inspect schools/children’s services and adult learning facilities and Read More

 

One Small Step…

February 3rd, 2012 by

… for a beginning. We met today with the (co-) head of the Seattle Children’s Implant team, and then the Psycho-Social specialist.  Three hours of talking.  Tate is such a trooper!  LOTS of information to process.  I told Tate it’s like drinking from a fire Read More

 

My Heart

February 2nd, 2012 by

My heart SWELLS with pride when I listen to Cormac read… My heart SKIPS a beat when I see Calleigh run across the room… My heart nearly BURSTS when I see how much my kids love each other…. My heart feels like it’s BREAKING if any of my kids are in pain…. My Read More

 

Vestibular Study Part 2

February 2nd, 2012 by

Wednesday we travelled down to the University of Alabama in Tuscaloosa for the second and final part of the Vestibular Study the kids participated in. This time they got to ride in that special chair that could spin around and they also did something with neck muscles as well in another Read More

 

Another post on the Indiana Deaf Education Coalition about my blog…

February 2nd, 2012 by

You may need to click on the pictures to make them larger so that you can read what is being wrote.. I don’t mind it being disputed but seriously are we teenagers? Why can’t you have an adult conversation without calling names? Read More

 

World’s Tiniest Ear Created

February 2nd, 2012 by

This is completely fascinating and more than a little mind-bending. Scientists in Germany have developed the world’s tiniest ear, referred to as a “nano-ear.” This ear could be able to listen to the sounds of bacteria and viruses, both of which make noise as they move. Not only Read More

 

Did your MP turn their back on deaf children?

February 2nd, 2012 by

At the bottom of this blog is a depressingly long list of all the MPs who voted to cut benefits for deaf and other disabled children last night in the Welfare Reform Bill debate. Here is a website where you can work out who your MP is if you’re not sure. Apparently, you can send a message Read More

 

Please SUPPORT HB1367 ~ Send those e-mails…

February 2nd, 2012 by

Be respectful when you send and stick to the facts from your previous e-mail that you sent to the House.. If you want put Evan’s name in your subject line: For Evan Hine ~ SUPPPORT HB1367 Hear Indiana, a chapter of AG Bell for the Deaf and Hard of Hearing HB 1367 was assigned yesterday Read More

 

Author Posts on Forum

February 2nd, 2012 by

The author of a new book for young people, with a deaf main character, has posted on the forum about her book.  In her book “Flying to the Light,” the deaf character is a young boy with a type of super power. I have not read this book. If you read it, go back to the forum and Read More

 

GASTONIA, NC: Pit Bull Pup Scooped up and Needs a Home

February 2nd, 2012 by

Please contact Nicole at mom4twogirls0511@yahoo.comThis is Dolly, We were coming home from school and saw her cowering on the side of the road, so I parked my car and jumped out and ran across the street and scooped her up. We went straight to the vet to see if she was microchipped but no luck. Read More

 

Getting Better

February 2nd, 2012 by

Nolan is a few days into his oral antibiotic/Ciprodex ear drops, and his ear has stopped leaking. I’m keeping his right hearing aid out until we’re done with the antibiotics, so he’s still a bit compromised with regard to hearing. It is amazing how much losing all hearing in Read More

 

The Neptune Seminar!

February 2nd, 2012 by

We had over 30 people at the Neptune seminar in Rockville. I was able to see children that already got their bilateral Neptunes!!! I love the fact you can clip your processor anywhere!! I did a demonstration to a few people how I would wear my Neptune if I had one!!! I only wish!!!! I also got to Read More